Post by LD on Mar 23, 2010 14:25:04 GMT -5
I am writing on behalf of Dr. Richard Frye, a pediatric neurologist and research scientist at the UT Health Science Center in Houston. He has developed an online survey for parents of children with autism which inquires about seizures in children on the autism spectrum (see message from Dr. Frye below, with links to the IRB-approved survey). If you are interested, please use one of the two links below. Thank you for your support, and if you have any questions, please feel free to email me at lauren.dowell@uth.tmc.edu.
Lauren Dowell, M.S.
Research Associate
Department of Pediatrics
UT Health Science Center - Houston
Title: Survey on treatment for children with autism with and without seizures
Dear Autism family,
There is little understanding of the treatments that help control seizures and seizure-like activity in children with autism. To help understand which treatments are effective for controlling seizures, seizure-like activity and subclinical epileptiform discharges in autism Dr. Richard Frye has developed a relatively easy to complete on-line seizure survey for parents with children with autism spectrum disorder with and without seizures to complete. It is important that we obtain information about individuals without seizures, so that we can determine whether treatments affect individuals with and without seizures differently.
If your son/daughter (or you) is on the autism spectrum, regardless of whether you have clinical seizures, subclinical epileptiform discharges or seizure-like activity, we would like to ask you to fill out a survey created by Dr. Richard Frye. We think that this very detailed survey will provide a much richer understanding of the efficacy and possible side-effects of current treatments for seizures.
Please help us by filling out the survey and by forwarding information about this survey to other autism groups.
For individuals with seizures, subclinical epileptiform discharges or seizure-like activity, please use the following link: www.surveymethods.com/EndUser.aspx?EBCFA3B1ECACBAB8
For individuals without seizures, subclinical epileptiform discharges or seizure-like activity, please use the following link: www.surveymethods.com/EndUser.aspx?92B6DAC895D7C5C2
Thank you very much for helping us find answers to seizures in autism.
Sincerely,
Richard E. Frye, M.D., Ph.D., F.A.A.P.
Assistant Professor of Pediatrics and Neurology
University of Texas-Houston
Lauren Dowell, M.S.
Research Associate
Department of Pediatrics
UT Health Science Center - Houston
Lauren Dowell, M.S.
Research Associate
Department of Pediatrics
UT Health Science Center - Houston
Title: Survey on treatment for children with autism with and without seizures
Dear Autism family,
There is little understanding of the treatments that help control seizures and seizure-like activity in children with autism. To help understand which treatments are effective for controlling seizures, seizure-like activity and subclinical epileptiform discharges in autism Dr. Richard Frye has developed a relatively easy to complete on-line seizure survey for parents with children with autism spectrum disorder with and without seizures to complete. It is important that we obtain information about individuals without seizures, so that we can determine whether treatments affect individuals with and without seizures differently.
If your son/daughter (or you) is on the autism spectrum, regardless of whether you have clinical seizures, subclinical epileptiform discharges or seizure-like activity, we would like to ask you to fill out a survey created by Dr. Richard Frye. We think that this very detailed survey will provide a much richer understanding of the efficacy and possible side-effects of current treatments for seizures.
Please help us by filling out the survey and by forwarding information about this survey to other autism groups.
For individuals with seizures, subclinical epileptiform discharges or seizure-like activity, please use the following link: www.surveymethods.com/EndUser.aspx?EBCFA3B1ECACBAB8
For individuals without seizures, subclinical epileptiform discharges or seizure-like activity, please use the following link: www.surveymethods.com/EndUser.aspx?92B6DAC895D7C5C2
Thank you very much for helping us find answers to seizures in autism.
Sincerely,
Richard E. Frye, M.D., Ph.D., F.A.A.P.
Assistant Professor of Pediatrics and Neurology
University of Texas-Houston
Lauren Dowell, M.S.
Research Associate
Department of Pediatrics
UT Health Science Center - Houston